What is Stargardt Disease?
Stargardt disease is a genetic eye condition that affects the macula—the part of the eye responsible for sharp, central vision. It’s one of the most common inherited retinal diseases and is usually diagnosed in childhood or the teenage years.
People with Stargardt disease gradually lose their central vision over time. That can make everyday things like reading, recognizing faces, or seeing details more difficult. Peripheral (side) vision is usually still there, but the loss of central vision can have a big impact on day-to-day life.
Right now, there isn’t a cure—but there is a lot of progress happening in research.
Foundation Fighting Blindness
The Foundation Fighting Blindness is a nonprofit organization dedicated to finding treatments and cures for retinal diseases like Stargardt. Since it was founded in 1971, it has funded hundreds of research projects around the world, helping move science closer to real solutions.
They support cutting-edge research, including gene therapies, clinical trials, and other promising treatments aimed at slowing, stopping, or even reversing vision loss. They also provide resources and support for individuals and families affected by these conditions.
What is VisionWalk?
VisionWalk is one of the Foundation’s main fundraising events, held in cities across the country. It brings together families, friends, and teams who are all raising money for research.
Each year, we participate as a family team—raising money ahead of time and then walking together on the day of the event. It’s a great way for the kids to stay involved and feel like they’re part of something bigger, while also helping support real progress in research.
Why It Matters to Us
Everything we raise through By Lucy’s Light goes toward our annual VisionWalk donations to the Foundation Fighting Blindness. It’s a simple way for our family to stay involved and support the work being done.
We really appreciate you being here and supporting the cause.